By Emma Rooney (@blumencasey)
On February 3rd #hcsmca explored how stories can change things. We asked
- T1. How do patient stories impact the rare disease community?
- T2. How can we better value patient stories and respond to the insights shared?
- T3. What benefits should patients look for from contributing their stories?
- T4. What stories are missing from the rare disease community and how can we encourage different voices?
Here’s the Storify of our discussion.
— Martin R. Lemieux (@martin_lemieux) February 3, 2016
CT Seek out stories that on the surface are not similar to our own and then look for the connections and commonalities #hcsmca
— Pam Ressler (@pamressler) February 3, 2016
— Tattered Edge (@tatterededge) February 3, 2016
Read the complete #hcsmca chat 250 transcript.
Here’s everything we’ve organized and written about the #hcsmca Symposium so far. Big thanks to the entire Planning Committee Marina Bastawrous, Toronto; Janelle Chung, Vancouver; Colin Hung, Toronto; Isabel Jordan, Squamish BC; Lori Last, Vancouver; Leah Lockhart, Vancouver; Trish Paton, Edmonton; Pat Rich, Ottawa; Kevin Smith, Vancouver; Robyn Sussel, Vancouver; and Colleen Young, Toronto.
How to Unconference & the Challenges
- Submit a Challenge: Make the #hcsmca Symposium Relevant to You by Colleen Young
- How to Unconference #hcsmca Style by Colleen Young
- Vote for your favorite #hcsmca Symposium Challenges by Colleen Young
- How to Prepare for the Unconference Part of the #hcsmca Symposium by Colleen Young
- 10 Tips for Unconference Facilitators by Pam Ressler and Colleen Young
Speakers and Program
- #hcsmca to Host a National Symposium – Come with us to #QF16
- Meet the Powerhouse Panelists for #hcsmca Symposium
- #hcsmca Symposium Program & Speakers
- How to take part in the #hcsmca Symposium remotely by Trish Paton
- The livestream
Why a National Symposium
- #hcsmca Time to Take a Bow by Colleen Young
- #hcsmca National Symposium in Vancouver: The Last Waltz by Pat Rich
- #hcsmca: The Last Waltz (or … Not Last Tango in Vancouver) by Pat Rich
- #hcsmca: The Not so Hidden Agenda by Pat Rich
Patients Included (Caregivers and Students too)
- Announcing Scholarship Applications for #hcsmca’s National Symposium by Trish Paton
- Why the #hcsmca Symposium is Patients Included by Isabel Jordan
- Announcing the National #hcsmca Symposium’s Scholarship Winners by Colleen Young
- National #hcsmca Symposium Lands Out West: Why Vancouver? by Robyn Sussel
- Join the #hcsmca Symposium Dine-Around Feb 23 by Kathy Kastner
By Trish Paton (@)
You can’t make it to Vancouver for the #hcsmca Symposium? That’s OK. We would love to see you, but we know it can’t work for everyone. And we can’t fit all of #hcsmca in one room, anyway.
We’ve been planning on ways to participate if you can’t be here in real life. Here’s a few ideas you can use.
- First, download the #hcsmca Symposium Program (pdf)
- Join the livestream (www.youtube.com/embed/RdJcExxQrW0) as we broadcast mainstage from 8:45-11am Pacific time (Find your time zone.). Tweet the link!
- Follow the #hcsmca hashtag all day.
- Tweet @hcsmca a question with you’d like to ask the panel between now and Feb. 24, and we will get some of those questions into the morning.
- You can tweet questions throughout the day, too. We may not get to all of them, but we will do what we can! Make sure to use #hcsmca so we can find them.
- Stay on the #hcsmca channel for the day. We’re encouraging Challenge teams to have tweeters in the room, so a wider audience can participate.
- We are asking Challenge teams to use Google Docs to take live notes from sessions
Be sure to follow along and tweet #hcsmca. A FitBit ChargeHR will be given to the top #hcsmca Symposium tweeter (whether you attend in person or remotely). Prize donated by @telushealth.
After the conference, everything we can get our hands on or take pictures of will be uploaded for the whole #hcsmca community to share. We encourage the Challenge teams to continue their work past Feb. 24th and to report back their progress (both what worked and what didn’t).
See you online!
By Kathy Kastner (@kathykastner)
No need to dine alone the eve before the #hcsmca Symposium.
I’ve had such fun at conferences when a pre-conference dine-around was arranged. So, I’m going with the Nike slogan “Just do it” and am coordinating one for the #hcsmca National Symposium.
How it works
Sign your name to the restaurant of your choice in this Google doc. The sign-up sheet also includes and addresses of each restaurant. They are all within walking distance of the conference hotel The Hyatt Regency 655 Burrard St, Vancouver.
Meet in hotel lobby at 5:45pm on Tuesday, February 23. (Eat time is 6pm to accommodate the Eastern time zone-ers.) We’ll head to our respective meet ‘n eats for a get-to-know you IRL (in real life).
Here’s the list of restaurants to choose from. No special menu just special people. In case it’s not obvious, you pay your own way.
Reservations are under my name – Kathy Kastner.
- Cactus Club – top notch turf n surf (note 18% gratuity added to groups of 8+)
- Grain Tasting – lounge in hotel for drinks and appies ‘Dedicated to local growers’
- Royal Dinette – ‘farm to table’ The only location with a specific menu for groups of 8+ Example of a menu is in the Google Doc.
- Mosaic Grill – the hotel restaurant
- Sala Thai
- Italian Kitchen
- Copper Chimney – Indian
- Kamei – Japanese/Sushi
- Victoria Chinese
Sign-up here to join us. See you Tuesday!