Chat Summary 250: #RareDiseaseDay: Do stories change anything?
By Emma Rooney (@blumencasey)
On February 3rd #hcsmca explored how stories can change things. We asked
- T1. How do patient stories impact the rare disease community?
- T2. How can we better value patient stories and respond to the insights shared?
- T3. What benefits should patients look for from contributing their stories?
- T4. What stories are missing from the rare disease community and how can we encourage different voices?
Here’s the Storify of our discussion.
— Martin R. Lemieux (@martin_lemieux) February 3, 2016
CT Seek out stories that on the surface are not similar to our own and then look for the connections and commonalities #hcsmca
— Pam Ressler (@pamressler) February 3, 2016
— Tattered Edge (@tatterededge) February 3, 2016
Read the complete #hcsmca chat 250 transcript.